June 22, 2010

Gratitude Attitude

Posted in Fun Stuff tagged , , at 9:00 am by autismmommytherapist

Through my Tuesday and Thursday posts I’d like to provide a more widespread forum for parents, family members, and practitioners of children with disabilities to provide practical tips for parents, as well as a place to share their views on raising a child with a disability. These contributions will be their ideas and stories, and not necessarily reflect the sentiments of those of autismmommytherapist.

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Gratitude Attitude

This week I’d like to thank all of the people who gave up their precious time to edit my manuscript, which in its most primitive version, was a labor of love indeed.

To Marcia Adirim, who slogged through that first attempt, gave me invaluable insight, and remained my friend. As I’m writing I often say to myself “WWMD”, and I am not referring to Madonna.

To Charlotte Taylor, for her wisdom, her friendship, and for always just “getting it”.

To Jeanne and Brian Carr, the former for asking me questions I would never have thought to answer in the text, and the latter for helping me edit the “whiney”.

To my husband Jeffrey, for reading every word and reliving the experiences, whether he wanted to or not.

And a special mention to a dear friend and wonderful writer, Kaitlin O’Riley. Kaitlin not only introduced me to punctuation, but was kind enough to pave the way to her literary agency as well (my success there still remains to be seen…). She writes excellent historical romance novels, all of which despite my penchant for straight fiction and sci-fi I have read and relished. If you have a moment, please check out her blog at:  http://blog.kaitlinoriley.com

Tuesday Tips:

“What to tell a friend whose child has just been diagnosed with a disability”

Mary Craig

1)      Research, research, research then advocate, advocate, advocate!!

2)      Learn your child’s rights under Wright’s Law & the “No child left behind” mandates.

3)      Remember every day that nobody knows your child like you do, expert or not!

4)      Others (family members, friends, babysitters, etc.) need to know how to care for your child because the day will come that you’ll be exhausted and you’ll need a break. Let them help you because a happy, relaxed mommy is the best mommy to deal with all the fun autism stuff.

5)      Try not to lose your husband/significant other in this whole process, because these kids were born out of love and they need us to do our best to try & keep the love alive for them, and for ourselves.

Parents of Autistic Children

http://www.poac.net/

Mary’s Blog – Illuminate, Decorate & Fascinate

http://illuminatedecorateandfascinate.blogspot.com/

Babette Zschiegner

“What to tell a friend whose child has just been diagnosed with a disability”

1. She will need to try and remember not to “lose” herself. If there is something she enjoys doing just for herself she should try and keep at it… whether it is yoga, running, reading, listening to music.. whatever it is she should keep that time for herself. It is so easy to completely immerse yourself in the world of autism.. with all of the diets, therapies, research, and just playing chauffeur and advocating for your child that things you think aren’t as high on the priority list tend to get pushed to the side including your own health. When she can take care of herself then she will have more of the energy required to take care of all of her child’s needs.

2. Make time for her significant other… schedule dates and go on them. Try to remember to talk about other things besides her child’s autism. They did have other things in common before right?  A strong partnership goes a long long way when it comes to raising a child with autism.

3. Most importantly she should know that things can improve. Things that are difficult for her child today, like birthday parties or sand on their feet, might become favorite pass times in the future. An autism diagnosis comes with many challenges but it is not without it’s share of special joys. You really take a greater appreciation in what many would consider to be the small things.. writing their name, first words, tying shoes… because they are extra difficult for many kids with autism… these successes become all the sweeter and can become causes for celebration!  Enjoy each triumph no matter how small it seems!

Babette Zschiegner

Coach for Parents of Children with Autism

www.peacewithautism.com

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4 Comments »

  1. Kaitlin O'Riley said,

    Thank you, Kim, but it was my pleasure to read your writing!

  2. Marcia said,

    Much love back atcha. You remain MY inspiration!


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